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Life's winding road
Sorry I have been MIA from this forum! My dad has been through so much lately that I just haven't had the time to write. The good news is: HE'S IN REMISSION!!!! It finally took 6 cycles of Vidaza to be in complete remission which translates to a better cure/remission rate for him. They rechecked the registry and still no match so they will be using my brother as his donor as a haplo- transplant.
WOW such a change from the original plan but Dr. R said that the cord blood has a mortality rate of 30% and a haplo is around 10%. I like those odds better. Nov 11 is the date of his new birthday if everything goes well! His regimen will be Cytoxan//fludarabine pre-transplant then 2 days of Cytoxan and the addition of tacrolimus post-transplant to prevent GVHD. I will try to be with him as much as a can but my second child will be arriving around Dec. 15! talk about stress!!
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Daughter of father diagnosed with MDS RAEB-II intermediate risk due to normal cytogenetics. Blasts at 13% peripheral blood at diagnosis with no cytopenias. 6 cycles on Vidaza then on to SCT at Duke. BMT from my brother and now showing signs of relapse. DLI in the works.
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