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Old Mon Dec 21, 2015, 04:28 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Bailie, my understanding is that you can have MDS without any chromosome abnormalities.

I'm going to ask my haematologist if I can have another biopsy next time I see him, because except for WCC/neuts/lymphs my results this year have mostly been just within normal range and better than 4 years ago. No blasts are showing up in peripheral blood which I have tested every 4 weeks. I'm even wondering if I still have MDS. My results now look like they did when I just had idiopathic neutropenia.

Does anyone know of someone whose MDS has spontaneously resolved over time?
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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