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Old Tue Dec 29, 2015, 07:00 AM
Juan Juan is offline
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Join Date: Dec 2015
Location: Spain
Posts: 12
BOTH del5q + del20q

Hello to everyone,

First and foremost, let me apologize for my poor grammar and writing skills (I'm from Spain in Europe and sometimes I find it hard to express myself in english).

I would like to ask you all for any info on having both del5q and del20q chromosome mutation. My father (75yo) was diagnosed some months ago with MDS, and im trying to find everything I can about it online, but still havent found a person with both chromosome dels nor any papers on that.
I red that both of them have "good" prognosis, but I dont know if its just when isolated or what...

For now he is being treated with eprex (once a week) and exjade (for the iron) and had a blood transfusion 2 months ago... He looks "fine" and says he feels ok, though I dont know for how long can anyone be taking this kind of treatment before it stops working, and how it can "control" the blasts and chromosomes (as i told you, Im new to all this).

This is so hard to deal with, even more now during xmas days (they gave us the 2 years OS) and Im trying to be as well informed as i can, and attempting to find hope and strength wherever I might... so any help will be much appreciated. THANKS

PS: this is the first time ever I write in a forum of any kind, so Im not sure if I did it "the right way"...
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