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Hi - there is a lot of great information on the internet - but also some scary stuff and not everything is up to date - or applicable to your father. Everyone is different and MDS outcomes vary. It sounds like your father is lower risk MDS and could be relatively OK for years.
Is just his hemoglobin low? - and how low? If he's responding to EPex that's great - Ejade is usually given to combat iron overload associated with many blood transfusions - I'd ask why he's being given it now - does he have high iron levels?
If he's responding to epex and has no other symptoms it may not be time for a drug like Vidaza - although with q-5 deletion I think Revlimid is often the first choice and can be very effective - another question to ask the doctor.
Its also great your father generally feels well.
Best wishes
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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