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Thank you Paul,
The thing is, its all somehow misleading...
They told us he was in a RAEB2 but, as you said, apparently he looks like Low Risk... They told him to go with vidaza after the marrow test, but after the last (and better) bloodtest results, they decided to keep him going on Eprex...
The complete story is that at first, they told us he was at RAEB1 (2 months ago) but suddenly a new clinical trial appeared where they wanted so hard to put my father in. They said "It would be good for him to get a little worse so he can enter the trial"... thats hard to hear, wouldnt it have been better to keep being stable?? BTW, the trial was just vidaza + rebolade (good for platelets).
They did all tests again and finally told us that he was "good" to enter cause he had got worse, but the date expired so he couldnt...
On top of that, the marrow results said he had the del5q and del20q with 5%blasts, and in another page of the same document the number was 11%... they told us it might have been an error, but the true one was the 11%... ALL SO WEIRD, i dont know...
MDS is very scary, I know we are all in the same page here, but is it always this confusing and misleading also??
Thank god there are groups and forums like this one where we can share and help each other (Im new to this, but I hope some day I would be able to help others with my experience also).
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