I found this forum while searching for answers. First off, thank you. I couldn't find a support group that would give me any answers on social media. So this board is great!
My mother, Rhonda is 60 years old. She was diagnosed in December of 2013. She started the transplant in May and things were looking up. I returned home to Colorado and looking forward to her possibly visiting this year. My husband and I recently moved back to our hometown to take care of her and of course be much closer to family.
But she isn't doing too great and I don't know what's going to happen.
She doesn't eat much of anything because of her taste buds being out of wack. She stopped taking her medicine because of her esophagus and she is now receiving TPN to help with the weight lost, but it hasn't been working lately. She is only 82 pounds and she told me tonight that she is going to die.
I really don't know what to do for her. She is refusing to go to the doctor because her last visit resulted in a lot of waiting around for tests that didn't occur when she wanted it to. Mind you, my mother has always been pretty combative. Especially in hospital settings.
Is any of this normal? How can we fight this? I am so lost. I know she wants to fight, but it seems so hard.