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Marlene and Maggiemag - thanks heaps for your very helpful responses. They are much appreciated.
I'm quite health conscious so yes, I'm interested in what you have to say about nutritional ways of dealing with PN. While it's not painful at this stage, it's annoying as I feel as though I have been at the beach and have sand in my socks. I even took my socks off today just to check as I had actually been at the beach, but there was nothing there. Weird!
I don't know how to tell if it was the shingles or the MDS. I think I now have developed a a little PN in my right big toe as well. I'm currently at my son's place in Tasmania and am trying to wait until I get home to NSW in 3 weeks to see my usual GP so I can be followed up. However if I get a chance to see the haematologist here in Hobart while I'm having Intragam tomorrow I'll ask about it then.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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