Mon Apr 18, 2016, 10:15 AM
|
|
Member
|
|
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
|
|
There have been attempts at a registry, but they have met with resistance.
http://www.aamds.org/node/156
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
|