Quote:
Originally Posted by Greg H
Important Note on Medical Terminology: When doctors say a drug is "well-tolerated" that means it is "unlikely to kill you outright." That does not mean it will all be milk and cookies.
|
Ha Ha! I actually never thought about it that way, but it makes sense!
Like everyone else here, I am very sorry to read that your disease has come back and wish you continued strength in your fight.
I thought that it was interesting that you blamed prednisone for your current situation. When I first was diagnosed with very low but stable blood counts, my doctor tried 2 weeks of 100mg/day prednisone to see if that had any affect. My health and counts tanked during the trial and so I also think that it was a factor in my disease progression. My theory (and I always have one)
is that in immune mediated bone marrow failure, the rogue T-cells are going crazy attacking the body's cells. Prednisone lowers the bodies immune system, but doesn't kill off the rogue T-cells. So whatever fight the body had left against the those bad cells, it loses. Just a theory...
I also have pancreas issues. Are you doing Pancreatic Enzyme Replacement Therapy?