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Hopeful
My Dad is 78 yrs old and was diagnosed in 2010. His blood is not holding very well. It says around 7.1 and has been as low as 5HGB PLTS 7 to 10 seem to be the average and he requires them 1 to 2 times a week. His blast were 12 but after the first Vidaza treatment they went to 3. Vidaza did not work for any of his other counts so they took him off of it. He had trouble with his bladder and now has a catheter. He has been hospitalized 6 times in 8 weeks. MRSA virus-cured-Fungal Pneumonia-treating it now with Antibiotics-doc says it is small but is in both lungs. Every week it seems like something new. His white count is 1.8
Yes they do Antibody screening as his blood is now rare full of antibodies. Hard to find and takes a day to locate it. No test for PNH
Thanks for your reply. I feel like we are at the end of his disease and I just don't know what to expect or how long I have left with him.
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