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Welcome. What were the reasons for the MDS diagnosis? What type of MDS (there are many)? Did the information come from a bone marrow biopsy? Genetic mutations? Blasts? Have you had a stem cell transplant?
I have had 22 cycles of azacitidine(Vidaza). The Vidaza saved my life. I went the opposite direction than you. My first diagnosis was MDS (RAEB-II). I had eight cycles of Vidaza before getting a stem cell transplant. At about 210 days post transplant I relapsed to AML with the Philadelphia chromosome which is extremely rare. I then went back on Vidaza for 12 months along with dasatinib (for the Philadelphia chromosome).
I had been on Vitamins B-12 and D-3 for several years before my diagnosis. They obviously had no effect on my MDS. I'm sure they helped for other things.
Questions are always welcomed on this forum. We learn from each others' experience.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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