New to Site
My 2 year old granddaughter, Sadie Mae, has recently been diagnosed with AA. In April of this year, her mother, my daughter-in-law-Amber, took her to her regular doctor for unexplained bruises. She was diagnosed with ITP and was sent to St. Francis Children's Hospital in Tulsa, Oklahoma. Sadie went through all the conventional ITP treatments, and either had no response to them at all or very little response. The first BMT looked good...bone marrow flowly freely, mother cell there, but the second BMT was a different story...almost a total bone marrow failure. Sadie's older sister, Bailey who is 4 1/2, was tested for a bone marrow donor....she wasn't. Now, we are waiting for test results on Sadie before we can even look at the bone marrow bank. I have always been the "rock" of my family, but lately this condition has sent me in a tailspin. All I can say is..."I don't know!!" I would appreciated any advice...learning more and more everyday, mostly from this site.
Thanks in advance,
Denise-Nana of Sadie
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