|
Hi ForDad,
I am so sorry to hear this.
My husband's MDS did come on fast which made for a difficult diagnosis.
In March of 2008 his counts were totally normal. Dec. 1, 2008 we were in the hematologist's office. In Jan.,2009 he started what would be the first of over 125 blood/platelet transfusions. It took going to NIH in Bethesda, Md. in March, 2009 to get a firm diagnosis of MDS and a year and a half before his marrow presented with MDS.
After Campath and cyclosporine didn't work, he was the first guinea pig for the Eltrombopag (Promacta) clinical trial for MDS at NIH. He has been in remission for 5 1/2 years now and on no MDS meds. There was a time he was on his oncologist's death list. There is always hope. He is now 71 years old.
I wish you both the best.
Sally
|