[Fordad]

JordanN and Sally C,

Thank you both so much for sharing your experiences with me. It helps me to read what others have experienced so I can at least gauge what are normal expectations.
Sally C, My dad is seeing a oncologist/hematologist I think I left that out previously but he doesn't specialize in MDS/AML.
I appreciate the insight on the iron chelation therapy. Everything I have read gives different ranges so I guess it's the same as it is with the blood work...it depends on what the doctors ranges are.
I spoke with my mom this morning and dad woke up in the middle of the night in total confusion. He did not recognize my mother or his surroundings. Mom said he slept on and off all day and has "spots" all over. I can understand the sleep and the spots (his platelets were 11 on Friday), the confusion has me concerned. Mom did call the emergency line and they told her to wait until tomorrow and call his doctor. He is sleeping again..we will see what the day holds. I am in a little bit of a tailspin at how quickly this disease is grabbing hold of him.
Thank you both so much for your kind words, thoughts and prayers. My hope is that my dad has pain free full days and has many left. Realistically, I know that our time window is narrowing and I will cherish what time is left while trying to find the best treatments available for him.

Thank you again,
Have a blessed day