Hi lcl,
Has your son been tested for the genetic causes of VSAA?
Have they started the transplant search? Do they have a plan to move to transplant after a certain number of months?
It would be good to have a back-up plan ready, should it be needed. A transplant may be the required cure.
I do hope you see some sign soon!
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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