Quote:
Originally Posted by Warburg
Are these forums active? I realize that bone-marrow diseases are rare, but I have myelofibrosis, and I'm surprised that there is so little discussion of it here. I did find one thread that dealt with a bone-marrow transplant, but that's all.
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Marrowforums is primarily focused on aplastic anemia, MDS, PNH, and PRCA. Many of these patients are also dealing with myelofibrosis, which is why you find it mentioned in some of the discussions.
Here are two listservs that people with myelofibrosis might find useful:
MPDSUPPORT@LISTSERV.ICORS.ORG
MPN-NET@LISTSERV.ACOR.ORG