Does your doctor welcome questions or ideas that you bring up based on your use of the Internet, or would he or she seem to prefer that you not show up at appointments armed with information that you researched yourself?
I'm curious whether it's helpful for you to talk to your physician about information that you find at
AAMDS.org,
The MDS Foundation,
Marrowforums,
the PNH Support Group,
PubMed,
ClinicalTrials.gov,
The MDS Beacon,
RxList,
The American Cancer Society,
The Leukemia & Lymphoma Society, and a zillion other sites that you might frequent or might come across. (I don't mean these specific sites; I mean ALL websites that you visit.)
It's easy to find medical articles, patients stories, and sometimes dubious medical claims when you go googling around the Internet. Does finding information online keep you informed and help you work with your doctor, or is it ever a distraction that gets in the way of your teamwork?