[Rarity]

Originally Posted by Hopeful

Hi Rarity,

You mentioned that your husband has trisomy 8. This is thought to be a prognostic marker of immune mediated MDS that is responsive to IST. So keep this in mind, should his status change.

***Not understanding what this means? If you wouldn't mind explaining, I'd appreciate it. Thanks!

My doctors started to talk chelation after 15 units/bags of blood. They weren't ready to take action yet, but we started talking strategies. I think 20 units of blood is where doctors start to worry about iron overload.

**** We will keep track of the units too.

Viruses can be nasty and are considered one of the triggers for bone marrow failure. I think this was the case for me!

Hope your husband stays stable and strong!

***Thank you. We are wishing you the same!