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Thanks GoodDay5150!
My hematologist has treated 3 other PNH patients before in the past, back when he lived in NYC and worked at Columbia. He appears to be in his mid 40's. Do you think 3 PNH patients make him enough of an expert? My metro area has 2 million people. The closest metro area significantly bigger than mine would require driving 10 or so hours away one way. Not going to happen.
Is there a list of PNH experts/doctors somewhere? I'd love to see who is in my part of the U.S.
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