Sue,
Thank you for the welcome. I guess that complacency is an attempt at normal life. I am ready to be complacent about this area of my life again
so I can be more passionate about other things. I hope your husband is able to maintain his good response. I wish we could all be complacent about bone marrow failure. Ok, pity party over.
I do not have a donor. We have never even considered the possibility since with the 5q- syndrome diagnosis, I have been considered low risk. I am still waiting to hear from the hemo on the flow cytometry report that is to recount the periphreal blood blasts.
The James is not considered a COE. However, they do have an award winning hematology/oncology unit. They are a very well known university affiliated cancer clinic. They do a great deal of cutting edge research and have doctors who specialize in very specific subcategories of each cancer. My previous dr there was an MDS specialist. So I feel good about returning there.
Barb