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Experience with Soliris (eculizumab)?
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Tue Apr 10, 2018, 01:05 PM
Leigh Clark
AAMDSIF Patient Educator
Join Date: Jun 2007
Posts: 22
HI John K- if you would like to talk with other PNH patients who have been using Soliris for years, contact AAMMDSIF and they can get you connected, 800-747-2820 x140 or email
help@aamds.org
. Best wishes to you.
Leigh Clark
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