After my April test results my hematologist was quite concerned because my PNH clone (monocyte) jumped from 0.11% to 6.88% in one year and was interpreted as being “consistent with PNH”. I have CBC every 3 months and the PNH test every year. She wanted me to have all bloodwork including the flow cytometry repeated in 3 months. I just had my recheck appointment today and the results were as follows (April results to July results):
RBC 3.67 to 3.25
WBC 4.7 to 2.8
Hemoglobin 13.0 to 11.5
Hematocrit 40.2 to 34.4
Neutrophils 2.9 to 1.263
Platelets 122 to 117
MCV 109.5 to 105.8
PNH clone (monocytes) 6.88% to 0.08%
So I guess the PNH was perhaps a false alarm? Can the PNH clone fluctuate like that?
My hematologist is no longer concerned and says the numbers are ‘good’ enough to graduate to not needing bloodwork for another 6 months. I am being labeled as “stable”. I guess in the big scheme of things I am very grateful.... but I am also very surprised. Time to exhale
Best to all~
Kathie