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Hi Matthew,
It will be good to get NIH on your mother's team. You can contact NIH directly, if you want to move things along. I remember sending an email to Dr Young and his team using the contact info from their website, and they were very responsive.
10 is a pretty low platelet level. I wouldn't play around with transfusion timing if my platelet counts were still dropping to 10.
Cyclosporine puts people at risk of fungal pneumonia. If your mother is on a high dosage, her doctor may be concerned about this.
take care and send that email to Dr Young!
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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