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Old Fri Jan 28, 2022, 12:21 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 768
Hi Matthew,

I wouldn't delay a platelet transfusion if your mother's are still dropping to 10. That is dangerously low and she could risk a serious internal bleed if you delay even a day, and they continue to drop.

Also, I'd be cautious with tapering cyclosporine so soon. That is the drug that is keeping her immune system at bay right now. My AA expert only recommended tapering after 3 months of no improvement in any lines, and then the taper was incredibly slow.

If she is tapered too soon, you risk losing all the progress that you've made!

Of course her situation may be different if her trough levels are staying high even with a lower dosage. Cyclosporine dosing is an art.

Hopefully, you get that second opinion soon!
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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