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Old Tue Apr 19, 2022, 01:10 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 769
Hi mola-tecta,

It looks like verapamil is used for the treatment of high blood pressure. I have friends who take blood pressure medicines and know that they went through a lot of trial-and-error with different types/brands to find the one with the least side-effects. Hopefully, her regular doctor will re-evaluate whether verapamil is the right medication for her.

I wouldn't take prednisone as an appetite stimulant. Is she still taking Exjade? Could the dosing be too high for her now lower weight?

When I had trouble eating, I had no desire for things that were sweet. You could try blending these drinks with ice, avocado, and/or milk to make them less sweet. Will she eat regular bland foods?

Hope you get to her regular doctor soon!
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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