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Old Tue Apr 19, 2022, 01:33 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,407
Mola-tecta,

I can understand your frustration. Give her some time to for things to settle down and her body to recover.

John couldn't drink Ensure either. We've used Orgain in the past. Not as sweet as Ensure. Also, she may be able to tolerate it better by drinking through a straw.There are a lot of protein powders out there you can try. You can make your own shakes with it. Lots of trial and error though. For a while, John could only drink Auqafina bottled water. And Seagrams ginger ale. Any other brands just made him nauseated.

They tried to have John take those nasty Potassium pill. Too big and hard on the stomach. V8 juice or other vegetable juice will have as much, and more, potassium as the pill. There are fruit juices with a good portion of Potassium also.

Also look into electrolyte drinks. Most are too sweet too but you can mix them with a tart juice and sip on it throughout the day. Pedialyte might be a good option for her.

I echo Hopeful's concern regarding the Exjade. She may need to stop it until her stomach feels better and start back up on lower dose. John was always stopping and starting it. He could take it for about 3-4 weeks, and then would need to stop until his stomach felt better.

Hang in there....M
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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