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Old Thu May 5, 2022, 01:42 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 769
Hi Matthew,

I remember that my hematologist what occasionally do a manual count to confirm the numbers. They also would view a sample of my blood under the microscope to look for changes. You may want to request this at your mom's next appointment, if they aren't doing it already.

Does your mom feel amazing after her blood transfusions? Going from a hemoglobin of 7 to 12 is big, and she would feel the difference.

I use to be able to tell when my hemoglobin was below 10 with a simple test: look up at the ceiling and then look straight ahead. If this made me dizzy, I was below 10. It was uncanningly accurate for me.

Just some random thoughts.
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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