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Wow - I'm really saddened and surprised to read this. I've heard that some hospitals are overloaded because people were delaying care during the height of COVID.
Weekly transfusions are never a good thing.
Have you considered consulting with Dr Young at the NIH in parallel with the wait?
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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