There are several Facebook groups.
Support groups are also available at www.AAMDS.org Ask LeighClark
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Last edited by triumphe64 : Mon Sep 5, 2022 at 05:56 PM.
Reason: add info
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