[Zoe's Life]

Maggie,

Welcome to the forum! YOUCH!! They lost a BMB?!? They lost my pap smear once, but that is nothing like a BMB.

A high hemoglobin is unusal in MDS. How are his other counts?

It is very common to take a watch and wait with low risk MDS. Does he have any chromosome abnormalities? Basically, with low risk MDS they do supportive care to improve quality of life, but if his counts are good and he is feeling OK, they will watch and wait. Life expectancy can be long with low risk, particularly if you husband is younger (you don't say how old he is).

If you google myelodysplastic syndrome you will find a ton of information. Don't be put off by prognosis though as most info is older and new meds are coming out all the time. He sounds like he is doing well. Many folks with low risk can do well for years. My doctor has a patient who has been living for 30+ years with 5q-.

Also, you can go to Site Announcements on the main page and click "more Services..." You will find many links to give you more info.

I am glad you found us. Ask any question, likely someone will be able to help you.

Zoe