Quote:
Originally Posted by Ruth Cuadra
Hi, Alex.
I stopped taking most drugs by the 5-year mark, but I still have mouth and dry-eye problems that don't seem to get better or worse so I just treat the symptoms.
Regards,
Ruth
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Hi Ruth
Thanks for replying.
Well its great to know that you were off of drugs by the 5th year.
I wish to be off by around that mark (Ya, i know each body reacts differently and comparing only frustrates but just statistically speaking
)
Right now i have to visit the medical center every second month for evaluation and perhaps to taper the CSA 100mg(bid)or Mycophenolate.
I was on Steriods before but had to be taken out.
I developed AVN (like i had not enf goin on) must admit it was the tuffest thing to know in this whole journey.
Well i try and stay mentally active but miss sports.
I think to be on top of this whole AA thing- is be mentally strong, good amount of family support and ofcourse good set of physicians.
Well i hope i can discuss more abt cGVHD and other issues abt AA.
I hope other ppl can share their experiences .
Best Regards
Alex