[sallyt]

Hello,

I was a member of the old AA-MDS-Talk Listserv a number of years ago. I had to drop out for a while, due to many issues. Then, I couldn't find the list! I recently found this forum. Anyway, I did get much better. I have MDS and have been going along with life as a "normal" person, with my regular trips to Dana Farber, but, once again, this disease has reared its ugly head. My hgb & hct are dropping lower & lower (I have RA) and I've been undergoing weekly iron infusions, B12 shots, taking mega doses of folate, but things aren't turning around. Has anyone else been through this course of treatment? It's my first time, normally I've just had blood tx's but my hm doesn't want to keep that up. Would like to hear from anyone who's gone through this---and from any of my old and new friends out there as well!

Thanks,
Sally
dx 1999, MDS-RA. Narrowly escaped BMT in 2000, improved with Procrit, still fighting the battle.