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Have they checked you for other nutrients?
Hi Tammy,
Did they check your B12, MMA, homocystine, folate, B6 and iron levels also. If not, get them to do it. If they have, get a copy of the results. Do not settle for them telling you they are in the "normal" range. Many docs are not up to date on adequate B12 levels and peripheral neuropathy (PN). The peripheral neuropathies can be due to B vitamin deficiencies. B vitamins are crucial to blood production and DNA/RNA health. Since you've already had a copper deficiency, you need to be checked for other nutritional imbalances.
And....if your b12 is in the low-normal range, then there's a good chance you are deficient. Low Normal B12 serum levels in the presence of anemia and PN are good indicators that you need B12. Your B12 should be at least 500. You do not get PN from a low immune system. PN is a symptom of something else going on. I can give you a link to a PN forum if you're interested. I can also send you a PDF on B12 if you would like.
Do you know if you are sensitive to gluten? This could contribute to malabsorption of nutrients in your food.
My husband ended up with PN and it's a slow process to reverse it.
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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