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I'm the caretaker of my 14 y.o. sister who was diagnosed in Oct 2007 w/ Severe Aplastic Anemia. The ATG didn't work for her. We are still taking cyclosporine. The hair growth I think increased some on her arms but not enough for me to even notice. Her hair is actually falling out from one of the meds. I was thinking it might be the cyclosporine. I may be wrong. It's not thin enough for anyone else to notice but it comes out alot while bathing. I would love to stay in touch with you since I don't know anyone else with a child w/ AA especially a teenage girl.
Is your daughter still going to school? My sister is homebound and this is the one thing that really gets her down.
We are super lucky as we heard last week that we have 4 potential bone marrow donors and should get a transplant sometime this summer. Are they looking for a match for your daughter?
Sorry to ask so many questions!
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