Dick, you are so right that "not enough" is one of the basic problems with having MDS--or aplastic anemia or PNH or any one of a large number of other diseases that affect only a relatively small number of people. But I'm glad you focussed on something we CAN do to help get more money and resources directed at solving the problems of bone marrow diseases. The
Capitol Hill Advocacy Day that the AA&MDSIF is organizing in conjunction with the
Patient Conference in July will give us a chance to be heard by people who are in a position to help us. Anyone can participate in the Advocacy Day even if they don't attend the Conference.
Thanks for speaking up.
Regards,
Ruth