Quote:
Originally Posted by Ruth Cuadra
But I'm glad you focussed on something we CAN do to help get more money and resources directed at solving the problems of bone marrow diseases. The Capitol Hill Advocacy Day that the AA&MDSIF is organizing in conjunction with the Patient Conference in July will give us a chance to be heard by people who are in a position to help us. Anyone can participate in the Advocacy Day even if they don't attend the Conference.
Thanks for speaking up.
Regards,
Ruth |
No, thank you for letting me spout off, it's nice to have a place like this forum where we can "let go" amoung others who understand. I get so tired and frustrated with this disease sometimes, I just have to vent to keep from getting down on myself or getting depressed. In a way it helps me keep on fighting. I do so hope that the Advocacy Day and Conference will enlighten the right people so we are all not just forgotten and "wailing in the wind".
Ruth, thank you, it means so much to me.