Hello
I have been using the MPD network for about a year, since I had a diagnosis of myeloproliferative disorder, ET. I had high platelets and low hemoglobin (around 100 hgb, platelets from 500 to 700. My hemo did not recommend any treatment besides aspirin. In April my hemoglobin dropped to 85 and I had a BMB which suggested RARS (those ringadings showed up) but since platelets were still too high, perhaps a myelodyplastic/myeloproliferative disorder. I have not got all the results about chromosomal changes. Again, in June my hemo said to watch and wait! I am sort of depressed, with great fatigue.
In Canada some of the newer meds are not available. May in trials? I am looking for another hemo for a second opinion.
