Is it time to have loving conversations?
Hi txgirl,
I'm only 69, but I worry about how my family will get along without me. I'm sure your dad has similar thoughts. At his age, MDS will progress fairly rapidly. Perhaps the thing he can use most is for his family to know him in a caring way. It may help to ask him about his experiences as a young man, his courtship, his triumphs and regrets, anything that will provide loving memories. I have also written an ethical will for my family. It is not binding, like a normal will, but it pases on more than property. It expresses my core beliefs, values and purpose in life and my hopes for my children and grandchildren. Of course, do everything yuo can medically, but also take care of the soul.
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Steve Kessler,Age 71, Dx 3/2001, Currently AML converted from MDS, 5q-, 11q23, Negative response to Aranesp, Revlimid. Partial response to Vidaza in the past. On a study using ON1910.NA, counts too low to go to Stanford on schedule.
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