Marc,
Take look at these. The first two address the use of anti-oxidants to help regulate normal blood cells in MDS and then PNH. The last is something I came across only in the past few months. It's being used for immune diseases, cancer, autoimmune, etc. It's using an approved drug, off-label at very very low doses.
http://seandennis.com/nac4mds/
http://lib.bioinfo.pl/auth:Fibach,E
http://www.ldninfo.org/index.htm
John has used herbs and acupuncture also. He saw no difference with chinese herbs but the acupuncture has been beneficial for his overall energy. He also does lots of stuff with nutrition via what we eat and supplements. Do you know if you are getting an adequate intake of the "classic" vitmains and minerals for supporting blood production?
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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