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Originally Posted by Neil Cuadra
Hello Bill and welcome. Thanks for offering to share your experiences with other patients.
How long ago were you diagnosed with MDS? Since you're starting Exjade, you've presumably been getting transfusions as supportive care. Have your transfusions been frequent? Have you had any other MDS treatments?
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I guess it was about 3 or 4 years ago I was diagnosed with MDS. The transfusions aren't too frequent (every 5 to 7 weeks), I've been getting them for a little over a year. I've received Arenesp injections before they began the transfusions but it wasn't much help. Lately the doctor has been giving the Arenesp injections in addition to my transfusions and it has been beneficial for the first couple of weeks, however, like everyone else that receives multiple blood transfusions, I've accumulated large amounts of iron . . . thus the Exjade odyssey begins.