Hi Frank,
Yes, it will be difficult to find two patients with MDS that have the same symptoms - thats why the disease is called Myelodysplastic syndromes. Syndrome means the association of several clinically recognizable features, signs, symptoms, phenomena or characteristics that often occur together, so that the presence of one feature alerts the physician to the presence of the others.
We have different HGB, white blood cell counts, platelet counts, % of blast cells, chromosome aberrations, transfusion needs, performance status, other diseases etc.
That is why there are so many drugs in trials for MDS - more than 800 trials. Everybody is hoping that the researchers will find something that is effective in their case.
You are really very lucky when you had such a wonderful result with Prednisone
! It did nothing for me when I tried it 2006 (at that time my diagnosis was myelofibrosis).
Kind regards
Birgitta-A
69 yo, dx MDS May 2006, transfusion dependent, Desferal 4 days with transfusions, Neupogen 2 injections/week, asymptomatic