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Hi Rob, I'm also in So Cal and going through the City of Hope, am 52 and very new to this. Was your pneumonia related to the MDS or coincidental? Your count problems are different than mine---- my big problem is hgb which are falling. I seem to get persistent coughs when my hgb is really low, but no one has confirmed this is related, but I definitely wonder, which is why i'm curious about the pneumonia.
They are going back and forth between a wait and see, and needing a transplant. My only sib is not a match, so they are doing a search--- I have preliminarily 3 exact and 200 close, but don't know anything else here other than further inquiries and testing need to be done. Dont' know what my blasts are, haven't known anything about that until reading these boards, so I guess I need to ask that. You say you are intermediate-high risk, do you know why? I'm intermediate 1-- but don't know my risk factor, just seem to have been led to believe its early but worrisome....
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