[Wassi]

My father has been in hospital for a week and a half.

This is a really long story, I will tell as short a version as possible.......

He has had stomach problems for going on 8 years with bloating and pain in his stomach, on the right side. The pain got very severe about 3 months ago while he was traveling in his RV and was at altitude. When returning home to San Diego, he developed a low grade fever. He had this constant fever and was very fatigued for 3-4 weeks. His condition was getting worse, with the fever spiking every day to around 101 or 102.

He was finally admitted into hospital last Tuesday where his condition rapidly got worse. His fever has been spiking to 103 and beyond many days!

They did a Marrow biopsy and diagnosed MDS two days into beng admitted into hospital. (his brother actually died from MDS 10 years ago within 6 months of being diagnosed).

This evening they told him he has RAEB-2, but I dont know any further details yet.

He has had 4 blood transfusions and his hemoglobin has gone up from 6.3 to 8 or so. They started him on procrit a week ago and he got his 2nd dose today.

He is having other complications such as extreme pain in his chest and tightness too. He is on oxygen 24/7 and now morphine for the pain too.

The main concern is his Fever of unknown origin (FUO). They have done every scan, test, MRI, radioactive scan etc. that you can think of and cannot determine the cause of the infection / fever.

We believe he needs to move from his hospital to somewhere better and maybe see a specialist who knows MDS well. He does currently have a blood specialist, infectious disease specialist and many other people seeing him and nobody can get to the bottom of the fever but I think it may be time to move him elsewhere and get other opinions etc.

I would just like to know if anyone can identify with this and has any suggestions?

Any help or advice would be much appreciated, thank you!