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Old Sun Nov 16, 2008, 08:49 AM
Margie Margie is offline
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Join Date: Sep 2007
Location: Wylie, Texas
Posts: 42
just diagnosed with MDS - RAEB-2, please help

Hi Wassi,

I am hesitant to mention this because it sounds so simplistic compared to the more serious blood problems your father has , but did anyone ever find out why your father had problems with his stomach for so many years or what was causing his stomach to hurt on the Colorado trip? I have had very low counts in all three lines for a long time, but the only thing that has ever caused me to have fever is diverticulitis. Your father's stomach symptoms sound much like mine, and traveling aggravates it. It is very hard to diagnose, even with a catscan. I know others who seem to have this problem along side myelodysplasia. I more or less cured the diverticulitis with a change of diet and liquids, and no longer have the bad stomach pains nor temperature. This does not cure my myelodysplasia, but certainly makes me more comfortable. It also stops the danger of a rupture of a diverticlum which is what my doctor was so fearful of.
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