George and all,
There was a presentation on insurance and disability issues at the 2006 AA&MDSIF Patient Conference given by Kevin Lucia from
Georgetown University Health Policy Institute. Although they are primarily a research organization, they may be able to provide some guidance and referrals about the process of applying for SSDI. There is contact information at their website.
Also, Leigh Clark of the
AA&MDSIF tells me that several MDS patients who believe their disease is service-related have fought the VA and are now receiving benefits. Some of these patients participate in the Foundation's
Global Support Network. If you are interested in talking to any of them individually, call Leigh at (800) 747-2820 and she will get you connected.
Regards,
Ruth