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Old Tue Dec 30, 2008, 05:50 PM
aggarab aggarab is offline
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Join Date: Dec 2008
Location: New York, NY
Posts: 4
Father has MDS and Very Low Platelets - HELP

Hello All,
I am new to this forum and looking to get some information. My father, age 57 was diagnosed with MDS in August 2008. He is now being treated for MDS at Mt. Sinai in New York. The doctor told us that he has low risk MDS as per IPSS and he was put on Vidaza. He just completed his first cycle (a week of injections followed by 3 weeks). During this time, he platelets have taken a major drop. Before starting Vidaza, his platelets were low but holding their own around 15000 to 20000. Now his platelets are in the range of 3000 to 6000 which is extremely low. This has got the doctor concerned. The doctor is thinking of putting him on steroids to raise the platelets but is trying to avoid it due to his other condictions (Heart attack, Diabeties and Ulcer). He has been complaining of minor bleeding in his gums.

Is there anyone out there with some information or experience with a similar condition? What can we expect with such Please advise.

Thanks and have a happy new year
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