Thread: MDS survivors
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  #9  
Old Fri Mar 27, 2009, 12:51 AM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 617
Hi, jnwink.

Only about 10% of MDS patients will transform to leukemia. For those who don't transform, their MDS may be stable for a long period or change relatively slowly. It's important for all MDS patients to remain in a doctor's care with regular checkups to look for changes in blood counts that might require treatment. From my own experience, I know that it is possible to become accustomed to living with low blood counts. At the time I was diagnosed with aplastic anemia, I was working full time, taking care of my family, and doing volunteer work with hemoglobin of 4.6! I didn't know I was tired until the doctor told me I was sick. So, while living with low counts can produce all sorts of problems it doesn't necessarily incapacitate you.

Hope this answers your question.

Regards,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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