Hi, jnwink.
Only about 10% of MDS patients will transform to leukemia. For those who don't transform, their MDS may be stable for a long period or change relatively slowly. It's important for all MDS patients to remain in a doctor's care with regular checkups to look for changes in blood counts that might require treatment. From my own experience, I know that it is possible to become accustomed to living with low blood counts. At the time I was diagnosed with aplastic anemia, I was working full time, taking care of my family, and doing volunteer work with hemoglobin of 4.6! I didn't know I was tired until the doctor told me I was sick. So, while living with low counts can produce all sorts of problems it doesn't necessarily incapacitate you.
Hope this answers your question.
Regards,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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