Surviving MDS
Hello everyone: I just finished my 16th 5 day cycle of Dacogen today(since May 1, 2007). My counts are great and I continue in total remission. Mid July I will have another bone marrow to confirm this. It's difficult to write this when so many of you are having difficulties of one type or another. The main reason is to give you hope to see someone with a positive result. It is difficult to share a treatment room with someone who will be there for 8 hours and I'm gone in 1 hr., and many times they have a very sad or uncertain story to share with me. Just because I'm doing well doesn't mean I'm complacent. I'm always looking for the future treatments which might give me a more secure future. For instance the different combination of drugs they have started testing. If I'm doing this well on Dacogen alone, what might the future hold with a combo of Dacogen and Vidaza or some other drugs. As always I will think of all of you in my prayers each day.
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Mike Conlon
Go Steelers(Seven is Heaven)
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