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Old Fri Sep 12, 2014, 04:07 AM
Alcof Alcof is offline
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Join Date: Aug 2014
Location: New Zealand
Posts: 22
Bad Day today - Nasty rash

Today is not a good day. My Dad has really taken a turn for the worse. He has burning fever, his head is covered in a red large lump rash, he has large ulcers through his mouth and his face is swollen. His tongue and gums are so swollen that he can hardly talk and is struggling to eat at all. He is really struggling.

The doctors are quite at a loss. They are looking for infection. They are growing cultures off everything we can find. They have done MRI, ECG and all sorts and cannot find the source of infection. It will take a few days for the cultures to grow anything. In the meantime Dad seems to be declining. He's trying so hard and we can't do anything.

Goes to show that with Neutrophils of Zero its just so verydifficult to stay infection free.

I'm now going through the process of considering all his medications and what might be causing such a reaction in case its not an infection...
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Father 72 has been diagnosed VSAA June 2014, was on cyclosporine as first treatment 06/2014 - 09/2014. 8 weeks after diagnosis doctor believe he would not survive ATG Treatment. GCSF 3 weeks Aug 2014 Currently on Eltrombopag 09/14 Danazol 25/08/14.
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