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Thank you all for your thoughts..
Thank you so much for all the support. Its so easy to get discouraged when I see my Dad trying to be brave when he is in so much discomfort. We are not out of trouble yet, but Dad is definitely improving.
They have isolated an infection in his mouth and a targeted treatment is starting to work. He still has difficulty eating and swallowing - which has caused him to start putting his kidneys under stress - which is aggravated further by the necessary nature of cyclosporine and the other medicines. But the doctors kicked it all up a gear, got a team of renal specialist in and put Dad on IV fluids and now they're happy with him, an Oral Specialist has joined in now and is working on getting his mouth right and a whole team of Gastro doctors looked in his gullet today and the treatment is working. The large nasty rash and swelling on his head has completely gone. His tongue is starting to shed the sores, and I believe I actually saw my Dad's teeth today!LOL!
We aren't giving up. And he isn't either.
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Father 72 has been diagnosed VSAA June 2014, was on cyclosporine as first treatment 06/2014 - 09/2014. 8 weeks after diagnosis doctor believe he would not survive ATG Treatment. GCSF 3 weeks Aug 2014 Currently on Eltrombopag 09/14 Danazol 25/08/14.
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